When your child is diagnosed with a bleeding disorder, there will be challenges, both physically and emotionally. Most children want to play and socialize, and this means engaging in physical activities that could be dangerous to a child with a bleeding disorder. Not only that, but most experts feel that physical activity is crucial to your child’s social and physical development.
The good news is that there are plenty of activities and sports that are safe for children with bleeding disorders. Once you and your child learn the signs of bleeding to look for and the necessary precautions to take, he or she can do most anything.
Tips for Parents and Children
The guidelines below can help your child enjoy a normal childhood.
Be prepared. Find out all you can about treatments, bleeding prevention and what to do in emergencies. Know the signs of bleeding to look for in your child, and keep cold packs in the freezer for bumps and bruises. You may also want to put together a “care package” for use in an emergency situation. Include anything your child might need if he or she requires a trip to the hospital.
Get support. If you or your child experiences emotional, financial and social problems, there are professionals and programs that can help. Visit a hemophilia treatment center (HTC), where a social worker can help with any concerns you have. In addition, support groups are available for children with bleeding disorders and their loved ones. There are even camps just for children with hemophilia, so they will be surrounded by children who are going through all the same experiences.
Inform others. Be sure to inform anyone who will be taking care of your child about your child’s condition — signs to look for and what to do in case of a bleeding episode, whether it’s minor or major. Such individuals include babysitters, teachers and day care staff, coaches and other school staff members. Get tips for these conversations with our helpful discussion guides.
You can also have your child wear a medical identification bracelet or carry a first aid card. To make this easier, we have provided a customizable first aid card.
Play it safe. Most physical activities and sports are safe for children with bleeding disorders, though this will depend on the severity of your child’s condition. Talk to the doctor or physical therapist about what’s safe for your child. You can also consult a list of safe activities. It is advisable for children to wear protective gear (such as helmets and knee and elbow pads) during activities that bring a high risk of injury.
When in doubt, your child’s healthcare team can provide you with helpful information and resources. In addition, there are many resources available on the Web. Check out HemophiliaMoms.com, where you will find information on coping with a child’s bleeding disorder, along with inspirational stories from moms who know what you’re going through.
Last Updated:
7/13/2009 1:09 PM